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A Rare Genomics Initiative
The Rare Genomics Institute, a nonprofit patient advocacy group, announced it will launch its new RareWear program, marking 2020’s International Rare Disease Day. The program works with patients who have rare diseases to connect them with medical device providers specializing in technology for monitoring and managing conditions. Once matched, patients will receive a device for free from medical device technology providers Bodimetrics, Biotricity, or Strados Labs.
In alignment with International Rare Disease Day, the Rare Genomics Institute (RG) has announced the launch of their RareWear program, a global philanthropic program designed to bridge rare disease patients with medical technology companies.
The Rare Genomics Institute said it has launched the RareWear program, a global philanthropic initiative to connect rare disease patients with medical device technology providers to better monitor and manage rare disease conditions.
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An estimated 250 million people worldwide are suffering from a rare disease.
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Washington, D.C. Aug 2 2023. The Rare Genomics Institute (RG) is pleased to announce that Bodimetrics, a medical device company that specializes in wearable ring oximeter that is accurate in all skin tones, will continue their support of the RG RareWear program by donating 40 circul+ smart rings to allow patients with cardiac, respiratory, and other conditions, as well as their families and clinicians, to monitor metrics relevant to their disease area and benefit from the real-time information these devices provide.