A Rare Genomics Initiative
For Prospective Partners
RG RareWear is a new initiative hosted by RG to connect medical device companies to the rare disease patient community. This program aims to provide rare disease patients with the latest available medical technology to monitor and manage their condition, while mutually benefiting the sponsoring company by introducing their technology to a highly motivated and in-need population. We are looking for partnerships with companies that can sponsor technology for our patients and in return receive numerous benefits, including:
Access to Rare Market
Positive PR
Active Product Marketing
Diversified Device Users
Customized Patient and Market Insights
Potential Clinical Trial Participants
We are looking to support the following conditions including but not limited to:
Cardiovascular/Heart Conditions
Respiratory Conditions
Muscular/Neuromuscular Conditions
Neurological Conditions
Ophthalmic Conditions
Chronic Conditions
Previous Success & Growth
To date we have helped more than 250 rare disease families, and 600+ individual patients with over $3.5M worth of next generation genome sequencing.
Rare Genomics has experienced great success and raised more than $2M since 2012 with partnership programs such as our annual BeHeard Science Challenge.
In 2017 alone, over $750,000 in funds were raised to support 23 rare disease studies globally.
Washington, D.C. Aug 2 2023. The Rare Genomics Institute (RG) is pleased to announce that Bodimetrics, a medical device company that specializes in wearable ring oximeter that is accurate in all skin tones, will continue their support of the RG RareWear program by donating 40 circul+ smart rings to allow patients with cardiac, respiratory, and other conditions, as well as their families and clinicians, to monitor metrics relevant to their disease area and benefit from the real-time information these devices provide.