How We Help Patients
If you have questions about a health condition, Rare Genomics Institute may have answers. One of our programs could offer you resources and support. To date, Rare Genomics has helped over 825 families and coordinated genetic sequencing for over 380 individuals who sought information. We have also assisted families with $5,050,000 in funding for next-generation sequencing. Take the first step by completing the Rare Genomics contact form.
Step 1: Initial Contact
After you complete the online Patient Contact Form, a Patient Advocate from our team will contact you within three business days via email to find out more about you. The goal of this step is to gather information from you about your condition or diagnosis, as well as your treatment history. This is the first step in determining whether Rare Genomics Institute can offer assistance based on your responses.
Step 2: Case Review
After we receive your responses, your Patient Advocate will schedule a call to get more detailed information to determine whether Rare Genomics Institute can offer help and resources through one of our services. You and your Patient Advocate will review your application to fill in any additional information about your medical history, including history of genome sequencing, and you will have an opportunity to ask questions about available services. After this conversation, your patient advocate will present your case at a weekly Rare Genomics Task Force meeting to assess your needs in terms of available services.
Step 3: Coordinate with RG Programs
If we can help you, your patient advocate will continue working with you in one of our programs. Together we will assist you by coordinating with physicians and labs by connecting you with resources uniquely suited to your needs.
Our Impact
RG Patient Advocacy has serviced over 825 families
Coordinated completion of over 380 genetic sequencing and research projects
Has assisted patients with funding for over $5,050,000 worth of next generation sequencing