RareShare is an online social network for patients, families, healthcare professionals and others affected by rare disease. We have over 8000 members in almost 1000 different rare disease communities. RareShare connects communities via direct messaging and forum discussions. 

RareShare also holds educational podcasts on topics and diseases of interest, featuring experts from around the world. A medical and clinical trial directory is also available for those wanting to explore additional treatment centers and options.

It is easy to feel isolated with a rare disease – RareShare exists to provide emotional support for those “1 in a million”. Together, we can develop hope for a cure.