A Rare Genomics Initiative
Partners
Marketing Partners
Through education, awareness, and a touch of humor, Patient Worthy’s goal is to inspire those in the rare disease community to tackle their chronic conditions, armed with the knowledge that they are not alone in their fight. They root for new treatment options, support spreading awareness and encourage the occasionally tough conversation. https://patientworthy.com/
Community Partners
As the leading social network for health, Inspire offers community partnership opportunities for 501(3)c non-profit organizations, as well as patient-centric insight and engagement solutions for the life science and healthcare industry. With over 100 national advocacy organization community partners and 2 million patient and caregiver members across more than 200 condition-specific support communities across oncology, chronic diseases, neurological disorders, and rare diseases, Inspire works closely with partners and customers to help achieve our mission: to accelerate medical progress through a world of connected patients. https://www.inspire.com/
Device Sponsors
BodiMetrics is dedicated to empowering consumers with products, services and solutions that will allow them to take charge of their healthcare, lower overall cost and improve their well-being. Our products are tested by independent third party labs to clinical standards as well, where indicated, approved by the FDA. For more information, visit http://www.bodimetrics.com and follow them on Twitter, Facebook and LinkedIn.
Strados Labs enables clinicians to enhance the management of respiratory health across the patient’s transition from the hospital to home. The Strados System objectively measures cardiopulmonary health allowing providers to remotely access at-risk patients using a novel biosensor. Please visit www.stradoslabs.com to learn more system objectively measures cardiopulmonary health allowing providers to remotely access at-risk patients using a novel biosensor. Please visit www.stradoslabs.com to learn more.
Biotricity (OTC: BTCY) is a remote patient monitoring company with a platform that combines real-time monitoring, global connectivity, big data, and clinically relevant data. The company’s first product suite is catered at complex cardiac patients with a vision to move into other disease categories by harnessing its flexible platform. To learn more, visit www.biotricity.com.
Washington, D.C. Aug 2 2023. The Rare Genomics Institute (RG) is pleased to announce that Bodimetrics, a medical device company that specializes in wearable ring oximeter that is accurate in all skin tones, will continue their support of the RG RareWear program by donating 40 circul+ smart rings to allow patients with cardiac, respiratory, and other conditions, as well as their families and clinicians, to monitor metrics relevant to their disease area and benefit from the real-time information these devices provide.