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Rare Genomics Institute

Empowering Patients Today, Accelerating Cures Tomorrow

News, Events, and Blogs

All the latest news from the team at Rare Genomics Institute including patient success stories, research, events and more.

Rare Genomics Institute
  • About/
    • What is Rare Genomics
    • Our Mission
    • Rare Disease Facts
    • Partners
    • The RG Team
    • Board of Directors
    • Privacy Statement
  • Patient Resources/
    • FAQ
    • Patient Success Stories
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    • Education
    • Rare-Ed Infographics
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News from Rare Genomics Institute

The Latest News, Events and More from RG

February 12, 2015

RG Connects HHD Patient to Doctors at Yale

February 12, 2015/ Rare Genomics
RG Connects HHD Patient to Doctors at Yale

RG had the privilege of helping a patient who was referred by the leader of Hailey-Hailey Disease (HHD) Worldwide Support Group. The patient has a very rare and debilitating blistering skin condition known as Hailey-Hailey Disease.

Read More
February 12, 2015/ Rare Genomics/ Comment
Patient Update
Yale, Hailey-Hailey Disease, Partnerships
  • About/
    • What is Rare Genomics
    • Our Mission
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    • Partners
    • The RG Team
    • Board of Directors
    • Privacy Statement
  • Patient Resources/
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    • Rare-Ed Infographics
  • Programs/
    • How We Help Patients
    • RG Patient Research Services
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    • RareWear
    • iHOPE
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    • BeHEARD Competition
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  • Donate/
    • Donate to RG
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Rare Genomics Institute

Did you know?
An estimated 250 million people worldwide are suffering from a rare disease.
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Disclaimer: RG connects patients to research institutions and assists with logistics and fundraising, but we cannot provide medical advice. Please consult your physician if you have any medical questions or call 911 in an emergency situation.