Rare Genomics Institute and BodiMetrics Partner to Provide Rare Disease Patients with Wearable Devices

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Rare Genomics Institute and BodiMetrics Partner to Provide Rare Disease Patients with Wearable Devices

Washington, D.C. Aug 2 2023.  The Rare Genomics Institute (RG) is pleased to announce that Bodimetrics, a medical device company that specializes in wearable ring oximeter that is accurate in all skin tones, will continue their support of the RG RareWear program by donating 40 circul+ smart rings to allow patients with cardiac, respiratory, and other conditions, as well as their families and clinicians, to monitor metrics relevant to their disease area and benefit from the real-time information these devices provide. 

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Rare Genomics Institute partners with Dante Labs to help children and adults who suffer from rare diseases

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Los Angeles C.A., February 28, 2019 – Rare Genomics Institute (RG) today announced a partnership with Dante Labs, an Italy and US-based diagnostic laboratory. RG is an international non-profit that gives rare disease patients access to state-of-the-art genomics sequencing technology, connections to scientists and researchers and philanthropic opportunities. Dante Labs is a genetic testing company specialized on whole genome sequencing and rare diseases. Through this partnership, Dante Labs has agreed to provide pro-bono Whole Genome Sequencing to select patients from Rare Genomics. Their test called, Whole Genome Sequencing (Full DNA Analysis), analyzes 100% of the DNA and provides personalized reports based on the patient’s medical history and symptoms.

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Genomenon Partners with Rare Genomics Institute, Begins with Philanthropic Donation

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ANN ARBOR, MICHIGAN – October 16, 2018 - Genomenon announced today that they will donate Mastermind Genomic Search Engine licenses to the entire team of clinical scientists at Rare Genomics Institute to accelerate their work for patients with rare diseases.

Rare Genomics Institute (RG) is a nonprofit (EIN: 45-3624709) organization that has been at the forefront of providing direct support to undiagnosed rare disease patients and their families since 2011. RG helps patients find a diagnosis, treatment, and cure by connecting them to expert scientists and biomedical researchers who have access to the most advanced technologies to diagnose and accelerate research.

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