Rare Genomics Institute Joins the Global #GivingTuesday Movement to Help People Affected by Rare Diseases
/Rare Genomics Institute Joins the Global #GivingTuesday Movement to Help People Affected by Rare Diseases
Washington, D.C, December 1, 2015 - Rare Genomics Institute (RG) has announced today it will join #GivingTuesday, a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity worldwide. The international nonprofit organization will use the raised funds to help people affected by rare disorders - helping them connect with research, diagnoses, and treatments.
“Rare diseases affect tens of millions of Americans and hundreds of millions worldwide. Advances in genomics and other technologies are starting to transform the lives of those with once unknown or little studied diseases.” said Jimmy Lin, MD, PhD, MHS, President of the Rare Genomics Institute. “While these developments are starting to save lives, many are still unaware of the possibilities of genetic testing, and others do not have the resources to access these new scientific advances. We are helping to change this.”
On December 1, Rare Genomics will join #GivingTuesday to kick off the holiday giving season and inspire individuals to support causes that make an impact in their communities.
“Giving Tuesday is all about people helping people and at our core that is what we are about. We help families and patients with unknown and rare diseases that were previously left without options to regain hope of learning more about their conditions,” said Paul Schindler, ED/CEO of RG. “This will be our first year participating in #GivingTuesday. A day of giving is a perfect way to celebrate and share the needs of rare disease kids and their families. We envision a future free of rare diseases.”
Join Rare Genomics Institute in our fight against rare diseases.
About: For more information, please visit our website at www.raregenomics.org.
RG is a global non-for-profit organization founded in to help children with undiagnosed and rare diseases access cutting-edge scientific technologies. We are building the bridge between science and those rare diseases, bringing holistic ecosystem hope and solutions.
Those who are interested in joining Rare Genomics Institute’s #GivingTuesday initiative can visit RG’s website (www.raregenomics.org), Facebook page (https://facebook.com/raregenomics) or follow #RareGenomics or #TheGeneticGen on Twitter.
Contact:
Paul Schindler
Rare Genomics Institute
844-448-RARE (7273)
paul.schindler@raregenomics.org