All the latest news from the team at Rare Genomics Institute including patient success stories, research, events and more.
It’s been 16 years since the first human genome was sequenced. That undertaking took almost 15 years, cost billions of dollars, and revolutionized genetic research. Since then, new sequencing technologies have led to lower sequencing costs and quicker turnaround times. Sequencing a genome today takes weeks rather than years and costs thousands, not billions.
The Rare Disease United Foundation launched the Beyond the Diagnosis exhibit just two years ago. The idea was that portraits of those living with rare diseases could allow people to become more engaged with the rare disease patient community; that there is more to a person living with a rare disease than the diagnosis itself.
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An estimated 250 million people worldwide are suffering from a rare disease.
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Strength in numbers
Our research sites include top universities and research institutes across the country.
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