iHOPE

RG's Patient Advocacy Team coordinates clinical whole genome sequencing (WGS), collectively called Next Generation Sequencing, for children and adults affected by rare or undiagnosed genetic illnesses. We can work with your referring physician to coordinate sequencing, and support the planning and return of results for you. Sequencing opportunities include free philanthropic sequencing for children in the iHope program with Illumina, as well as free sequencing for adults with Dante Labs. We can also recommend other sequencing labs that take insurance coverage. Please note, your physician should determine if next generation sequencing is needed, and recommend the testing for you.

Rare Genomics Institute (RG) is happy to partner with leading genetic sequencing laboratory Illumina Inc. (NASDAQ: ILMN) as part of their iHope program, which provides free clinical whole genome sequencing to children affected by rare or undiagnosed diseases. 

Who is eligible?

Children are eligible if they are suspected of having a rare or undiagnosed genetic disease and have a physician that recommends the test. When possible, both biological parents are also asked to provide a blood sample.

Note: iHope is intended for underserved or resource-limited patients who lack access to WGS through their insurance or other means.

Is there a cost associated? 

There are no costs for the sequencing and interpretation. There may be cost associated with visiting your physician and drawing samples that you will be responsible for.

How long will it take to get results and will they be private?

In an estimated 90 days the results will be sent to your referring physician.

How do I apply? 

Complete our RG application and a member of our Patient Advocacy Team will contact you for next steps to determine eligibility.