Rare Genomics Institute and Amazon Web Services Collaborate to Help Rare Disease
/Washington, D.C. March 2, 2022. The Rare Genomics Institute (RG) today announced it is receiving support from Amazon Web Services (AWS) to enhance its RareShare website. RareShare is a unique social hub serving hundreds of rare disorder communities since 2008, allowing direct exchange of information among patients, families, research organizations, and healthcare professionals to improve the lives of those affected.
AWS helps nonprofits – including those dedicated to health research and patient empowerment – use cloud technology to increase their impact. As part of the collaboration with the Rare Genomics Institute, AWS is providing unrestricted financial support funds for an array of RareShare projects, AWS computing credits, and project implementation support by dedicated AWS technical specialists. The Rare Genomics Institute plans to work with AWS to upgrade the RareShare website – modernizing the underlying software architecture, enhancing its appearance and navigational features, adding better cross-relational search capabilities, and expanding international access by adding language translation functions. With these improvements, current members will be able to more easily navigate through the website’s content and new visitors will experience an appealing interface that encourages them to explore and become active RareShare members.
“We are honored to be supported by the global leader in cloud computing,” said Jimmy Lin, President & CEO of Rare Genomics Institute. “It’s an impressive recognition of the cause we have been working on for many years, supporting hundreds of patients who literally have nowhere else to go. This support from AWS will help our organization expand our global community and give hope to many more people affected by rare ailments worldwide.”
About Rare Genomics Institute
Rare Genomics is an international 501(c) 3 non-profit that makes cutting edge research technologies of genome sequencing, physicians and scientists around the world accessible to rare disease patients. Rare Genomics helps families source, design and fund personalized research projects for diseases not otherwise studied helping rare disease patients find hope for a cure. By providing an expert network and an online crowdfunding mechanism Rare Genomics works alongside patients and their families, providing them with the necessary tools, knowledge, and connections so that they can better understand the cause of their disease. For further information on Rare Genomics, please visit www.raregenomics.org