Job Opportunities

There are no open paid positions at this time.

Volunteer Opportunities

Finance Associate

The Finance Associate will be charged with monitoring the financial components of the organization. In addition to experience creating and managing budgets, the ideal candidate will have successfully penned grants and proposals and participated in fundraising events.
Read the full job description here.

Operations Associate

The Operations Associate will be responsible for tending to various aspects of the operations of RGI to help ensure continued functioning of RGI including, but not limited to, HR-related activities, ensuring adherence to organizational policies and procedures, and managing operations projects. This position requires excellent organizational skills as well as flexibility, as the Associate will be expected to switch projects and tasks according to the needs of the organization.
Read the full job description here.

Our Volunteer Teams

The Rare Genomics Institute is a non-profit organization that relies on volunteers who are passionate about making a difference in the rare disease landscape. RGI is organized into three teams:

Patient Advocacy Team

Our patient advocates are on the front lines of rare disease research. Advocates guide patients through every step of the RGI process and conduct patient education and outreach. This is a great opportunity for someone who would like to make a difference by engaging directly with the people RGI helps.

Scientific Team

Our scientific team builds the infrastructure that connects patients to research sites and helps them find diagnoses, therapies, and cures. Different opportunities on the team include providing scientific consultations for patients, managing projects, and leading the overall scientific direction of the organization. For a complete list of opportunities, please click here.

Business Team

The business team plays a key role in allowing RGI to maximize impact. The team supervises internal operations such as accounting, business development, and fundraising, as well as external operations such as marketing and PR. If you are excited about using your business expertise to leverage the impact of scientists in rare disease research, this is an ideal opportunity for you.

If you are interested in any of the above, let us know here.

Diagnosing Rare Diseases

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Strength in Numbers
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